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More Aus/NZ links on other pages:
See also Australian support group directory
ACT ME/CFS Society - information and support in Canberra.
ACTA (Australian Chemical Trauma Alliance Inc.) is a non-profit organisation for people whose health has been adversely affected by chemicals.
Adults Need Smiles Too! - a charity project being run from Melbourne, Victoria, but covering the whole of Australia by post. It sends inspirational mail-outs to adult Australians who have a severe chronic or terminal illness (including severe physical and psychiatric illnesses) or are frail aged persons. Members may be nominated to join Adults Need Smiles Too! by themselves or another person. Volunteers and donor/supporters also welcome.
aessra (Allergy and Environmental Sensitivity Support and Research Association) - information on allergies and sensitivities etc..
Alison Hunter Memorial Foundation - news and information about the science and politics of current CFS research and advocacy issues, from a mainly Australian angle. Includes information from the 1998, 1999 and 2002 Sydney CFS Conferences, and comprehensive comment and analysis on the Guidelines, and a new medical politics section.
Australian Chemical Trauma Alliance - ACTA is a support group for people who have been affected by chemicals. The website has news about the effects of various chemicals and toxic substances on people's health, and multiple chemical sensitivity. There is a message board.
C.A.C.T.U.S. (CFS And Community Team of United Support) is a community based support group for ME/CFS sufferers, their families, and friends, in the North Western suburbs of Sydney.
Chronic Fatigue Syndrome Housing Australia Network (CFSHAN) - "a free service available at Yahoo Groups and moderated by Jonathan Wilson in Victoria. CFSHAN seeks to service each state/territory of Australia. Its success will depend on how many people use each states site. It can enable communication between sufferers specifically with CFS related illnesses regarding their accommodation needs." There is a Yahoo group for each State where people can seek or offer accommodation.
Cooinda Online - website of the Cooinda Computer Club, situated in the country region of South Australia. The Club has been set up to help people with a disability and/or chronic illness and their carers communicate with each other via the internet.
Guai Support Group - homepage of the international Guai-Support mailing list (about The Guaifenesin Protocol for FM) run by Aussie Tesa Marcon.
Hamilton Waikato New Zealand CFS/ME Support Group website.
Information for Students with ME/CFS - articles by Farrah Tate and links to additional resources.
Lupus Association of Tasmania - a self-help group for people suffering from Lupus and related auto-immune diseases (including Sjögren's Syndrome), also overlapping syndromes such as fibromyalgia.
ME/Chronic Fatigue Syndrome Association of Australia - our national organisation.
ME/CFS Society of NSW - MESoc's website features news and information about the Society, new ME/CFS Management Guidelines for GPs, and brochures in non-English languages.
ME/CFS/FM Society of Queensland (Toowoomba)
ME/CFS Society (S.A.) Inc. - information about the Society and its services, research news, and online articles from the Society's magazine Talking Point.
ME/CFS Society of Victoria - website features Questions and Answers, a library of over 100 medical journal articles from 1989 to 1997, general articles about CFS, book reviews, Media Watch, Parliamentary reports, E-mail Pen Friends, and more. Also has good books on CFS for sale by mail order.
ME/CFS Legal Resource Centre - a collection of resources to help people with ME/CFS and FM with legal, insurance, education and discrimination issues. "This illness necessarily includes the need to fight for one's legal rights."
Merle Fullerton's M.E/FM page.
ME/CFS Group Canterbury - from Christchurch, New Zealand.
Newcastle/Hunter Support Group - meets every second month on the first Monday of that month and new members are welcome. Please bring along afternoon tea and share a nice cuppa and a chat with people who understand this illness and best of all we help each other. The group sometimes have guest speakers and all we ask is a gold coin donation to help with the postage costs. For more information email Gail .
Otago and Southland M.E. Information and Support Services.
Positive Living for people with Fibromyalgia - from Auckland FM Support: "information for all people with Fibromyalgia and Occupational Overuse Syndrome or Repetitive Strain Injury (OOS or RSI), their relatives, friends and caregivers, and particularly for people in the Pacific Rim, Australasia and New Zealand who are affected in some way by this medical problem."
Scleroderma Queensland - information and support for sufferers of this connective tissue disorder which can also affect people with Fibromyalgia.
Web OOS Online Network - information and support for people with repetitive strain/occupational overuse injuries in New Zealand.
Wellington [NZ] ME/CFS Support Group .
Wollongong ME/CFS Support Group .
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We have some great personal sites in Australia and New Zealand. Many contain very useful information on CFS and related illnesses, accounts of treatments and therapies people have tried, and useful tips for coping.
Jodi now has her own site: a Hummingbirds guide to ME/CFIDS... Read her insightful writings, such as A Day In The Life Of ... Severe ME/CFS and A Million Stories Untold :"Imagine having to tell [your] story not just once but over and over again, all the while experiencing unspeakable pain, exhaustion, and mental confusion so profound that you struggle to remember how to speak at all. Imagine that story, the story of your life, not being believed time and time again ..." And check out Jodi's art as well.
Anelie's (Snaf's) CFS Sofa - "My life with CFS" and thoughtful writings, especially from a young person's point of view. Includes Maintaining Hope, Willpower and Chronic Illness and Illness and Identity.
Ricky Buchanan's personal site Not Done Living! The title reflects her philosophy of life: "I may have disabilities and problems and troubles and stuff that holds me back, but dammit I'm Not Done Living Yet!" Well worth a visit. See also Be Gentle With Everything - A Life Philosophy "My philosophy is that - far from not having the time to be gentle, people don't have the time not to do it. I guess that there's some 'silver lining' to having the diseases that I do ... I am forced to take time out and reflect on life and how I live it and what I think about things."
The Search for Chronic Wellness - "Perspectives on Chronic Fatigue Syndrome or rather, perspectives on the nature of chronic of degenerative illnesses" - papers on, among other things, thyroid disfunction, by Dennis Argall.
Experiences of ME/CFS sufferers on the ME/CFS Society of Victoria's website - includes My 'tired' is not like their 'tired'.
In CFS: An Internet Commentary on Chronic Fatigue Syndrome - Joy Stevenson's writings on having CFS are both thought provoking and easy to identify with. Also, check out Joy and Marj's CFS Glossary - "a (mostly) light-hearted look at the experience of Chronic Fatigue Syndrome".
Jaki's Fibromyalgia Journey site - her story, articles and poems about the "Fibromonster".
Julian Robinson's Chronic Fatigue Syndrome pages include thoughts on CFS and Medical Politics, treatment with transfer factor, and low dose naltrexone.
Ken Davis's Inside Out Life-Directions Blog - opposing DSP changes, life coaching for people with disabilities and chronic illness.
Kevin Paine's "fighting spurious complementary & alternative medicine (scam)" blog. "I am a former victim of health fraud, who now is trying to alert people to the tricks, lies and deceptions of the health fraud industry. If I can save just one person from the anguish of learning they have wasted their money on useless treatments, then this effort is worth it."
Rebecca's story - Rebecca is a teenage from Perth whose CFS may have been caused by being infected with Barmah Forest virus.
New Zealand CFS sufferer Richard Smallfield's Chronic Fatigue Syndrome & Environmental Illness pages. Contents include his story, poetry, and information on food and chemical sensitivity and Environmental Illness.
See also Australian True stories - personal writings on this website.
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Analytical Reference Laboratories (Melbourne) do pathology tests which are sometimes of help to some ME/CFS sufferers, eg the IgG93 Food Sensitivity Panel.
Bioscreen Information Service ....Specialist medical testing laboratory,
CFS Discovery - Dr D P Lewis's CFS clinic in Melbourne, Victoria - and how to buy his book, Turning Disability Toward Ability.
Food Allergy and Food Intolerance Information Site from Allergydietitian. Lots of helpful information about allergic reactions to food, gastro-intestinal problems such as Irritable Bowel Syndrome, and nutrition.
The new Gideon Lang Research Foundation has been set up to support the research into the causes of chronic pain and fatigue conditions begun by the Collaborative Pain Research Unit at Newcastle University.
Dr Mark Donohoe's Medical Site - information about CFS, multiple chemical sensitivities, complementary and alternative medicine, environmental medicine and more.
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Centrelink - and information for people who are ill, injured or have a disability; - including the Disability Support Pension.
Commonwealth Carelink Centres provide free and confidential information on community aged care, disability and other support services available locally or anywhere within Australia. This website explains how to contact them.Social Security information from ME/CFS Society of Victoria; includes extract from the Impairment Tables used to assess eligibility for the Disability Support Pension, and links to more.
TADAust Connect - "the TADAust Dial Up Internet Provider Service ... for people who possess a Disability Service Pension, Aged Pension or DVA Entitlement Card". $5.50 per month!
National Welfare Rights Network - useful site with lots of information and resources. Includes free access to the online edition of "The Independent Social Security Handbook".
ADCET online - "Australian Disability Clearinghouse on Education & Training" for people with disabilities - lots of useful links and contacts from Deakin University.
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last revised 2 Nov 2006