The opportunity to take part in this international research study, looking at the impact of ME/CFS on the quality of life of both patients and their family members, is still open. The deadline for participation is 31st March 2021.
This is a short and simple online survey designed to be accessible to all adults 18+, including severely affected patients.
There are two questionnaires in the survey, one for the patient and one for a life partner or family member. If you cannot be together to complete it, you can save and return. People with ME/CFS piloting the survey found each questionnaire only took about 5 minutes to complete.
If you are accessing the survey for the first time please use the link: https://redcap.link/MECFSFamilyImpactStudy
If you have already participated thank you for your participation, please do not complete the survey more than once.
If you have a family member who is still due to participate please could you let them know that the closing date is the 31st March 2021.
If you have started the study but lost the link to return please e-mail MEFROM16study@cardiff.ac.uk to be given your unique access code (please note this may take a few days).
Please share widely to encourage others to participate. We have reached our initial goal of 500 fully completed surveys. With your help we hope to reach a new target of 1000 complete sets of data. The greater the reach of this survey the more we can improve international understanding of how ME/CFS impacts patients and their family members.
Thank you and best wishes,
Dr Nina Muirhead and the Study Team at Cardiff University, United Kingdom.
Miss Nina Muirhead BA(oxon) BMBCh(oxon) MRCS DOHNS MEd PGDipDerm