ACT ME/Chronic Fatigue Syndrome Society is a not for profit, self help organisation which exists to give support and help to its members. It provides information about Myalgic Encephalomyelitis (ME) / Chronic Fatigue Syndrome (CFS) and Fibromyalgia Syndrome (FMS) to members, medical practitioners and the public and also promotes research. ACT ME/Chronic Fatigue Syndrome Society is coordinated by volunteers.
The Society is a member of SHOUT (Self Help Organisations United Together) which assists organisations to raise the profile of self help throughout the region and supports organisations to run effective groups through information, leasing of an appropriate space and maintaining a current database to promote the groups through the wider community.
The Society is fortunate to receive ACT Government funding for core functions and the remainder comes from membership subscriptions, donations and fundraising ventures.
ACT ME/Chronic Fatigue Syndrome Society does not provide medical advice or recommend or endorse any specific treatment, therapy, practitioner or service.
If you would like more information about ACT ME/Chronic Fatigue Syndrome Society and what it offers, please email or phone 6290 1984 for an enquiry pack.
This article by the founder of the ACT ME/Chronic Fatigue Syndrome Society explains how the Society was formed in 1983.
What we offer
Information Sessions for members and non members alike are held monthly (except January and December) and feature presentations by qualified speakers and practitioners. Come along to be informed and to meet other people with ME/Chronic Fatigue Syndrome and fibromyalgia over a cup of tea or coffee.
COMMUNITY LIAISON OFFICER
The Community Liaison Officer works on a part time basis and is available to provide support and information to both members and non members. Please email or phone 6290 1984 any time. If the line is not staffed, please leave your contact details and the Community Liaison Officer will get back to you as soon as possible.
SELF HELP COURSE
Learn practical strategies for coping with ME/CFS and FMS and how to develop your own individualised self management program. Adults of any age can benefit. The course is available to both members and non members however bookings are essential.
TELEPHONE INFORMATION AND SUPPORT SERVICE (TISS)
Telephone Information and Support Service is available to both members and non members and offers friendly support to callers who have questions about ME/CFS and fibromyalgia.
COFFEE CATCH UP
Coffee catch ups are small, informal gatherings for all members to enjoy conversation and coffee. A younger members’ coffee group, for members aged 18 to 39, also meets regularly.
During May there is an international focus to raise public awareness of ME/CFS and fibromyalgia. May 12 is International Awareness Day for Myalgic Encephalomyelitis/Chronic Fatigue Syndrome.
NATIONAL CENTRE FOR NEUROIMMUNOLOGY AND EMERGING DISEASES
National Centre for Neuroimmunology and Emerging Diseases(NCNED), Griffith University, is a world class research facility focusing on the etiology and pathomechanisms of ME/CFS. Its research is focused towards identifying biomarkers of ME/CFS for translation into the clinical environment.
NCNED is partnered with the Alison Hunter Memorial Foundation (AHMF).
What The Society Offers brochure;
ME/CFS/FMS brochure – an overview of ME/CFS and FMS;
ME/CFS & FMS Self Help Course brochure;
Emerge – quarterly journal for members – including local reports, personal stories, the latest ME/CFS news and world wide research;
Resource Guide for members – directory of services for people with ME/CFS and FMS in the ACT;
For Family and Friends booklet for members – a framework to help people who know someone with ME/CFS and FMS;
Mastering Special Events booklet for members – explores possible options on how to plan and enjoy non routine events and minimise relapses;
International Consensus Primer for Medical Practitioners (ICP) Myalgic Encephalomyelitis – Adult and Paediatric: International Consensus Primer for Medical Practitioners Copies are available from the Society;
Fibromyalgia Syndrome: A Clinical Case Definition and Guidelines for Medical Practitioners An Overview of the Canadian Consensus Document Copies are available from the Society;
Managing Chronic Fatigue Syndrome and Fibromyalgia: A Seven-Part Plan – This book by Dr Bruce Campbell forms the basis of the ME/CFS & FMS Self Help Course. Copies are available from the Society.
Further activities will depend on people helping with ideas, support and participation.
We are always happy to hear from those who would like to be involved.